Who we are

We are T1D UK Immunotherapy Consortium. Our website address is: http://www.type1diabetesresearch.org.uk.


Cardiff University is the Data Controller and is committed to respecting and protecting your personal data in accordance with your expectations and Data Protection legislation. The University has a Data Protection Officer who can be contacted at inforequest@cardiff.ac.uk. Further information about Data Protection, including your rights and details about how to contact the Information Commissioner’s Office should you wish to complain, can be found at the following: https://www.cardiff.ac.uk/public- information/policies-and-procedures/data-protection

What information do we collect?

Get Involved Form

The Clinical Engagement & Training Team of T1D UK collected information from you when you completed an enquiry form on the T1D UK website, we hold this information on a database to refer you to suitable trials that you may be able to participate in at present, or if they become available in the future. Your name, contact details, date of T1D diagnosis, age band, nearest research centre, will be used to refer you to research teams at study centres.

Under data protection law, we have to specify the legal basis that we are relying on to process your personal data. In providing your personal data for this research, we will process it on the basis that doing so is necessary for our public task for scientific and historical research purposes in accordance with the necessary safeguards, and is in the public interest.


When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.

An anonymised string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.


We collect information about visitors who comment on Sites that use our Akismet anti-spam service. The information we collect depends on how the User sets up Akismet for the Site, but typically includes the commenter’s IP address, user agent, referrer, and Site URL (along with other information directly provided by the commenter such as their name, username, email address, and the comment itself).


If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.


If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.

If you have an account and you log in to this site, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.

When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.

If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.

Embedded content from other websites

Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.

These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.

Who will have access to my data?

The only people in Cardiff University that will have access to information that identifies you will be the Clinical Engagement and Training Team of T1D UK Immunotherapy Consortium (CET team). If you are eligible for a research trial, your information will be passed on to Trial Managers and the research team at your nearest research centre.

Cardiff University will need to share this information with Trial Managers and researchers at your nearest centre for the purposes of allowing you the opportunity to participate in clinical trials.

How long we retain your data?

We will keep the data you have provided on our database indefinitely and contact you if a trial for which you may be eligible arises in the future.

If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognise and approve any follow-up comments automatically instead of holding them in a moderation queue.

For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.

Keeping your data confidential and safe?

Any personal data that we hold is kept on a secure data server that is password protected. This network is tightly controlled with access only given to appropriate approved individuals, the T1D UK Clinical Engagement and Training team.

You have a number of rights under data protection law and can find out more about these on our Cardiff University website. To safeguard your rights, we will use the minimum personally identifiable information possible.

What rights you have over your data

If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.

Where we send your data

Visitor comments may be checked through an automated spam detection service.