Participant Experiences

Nick

I participated in the VER-A-T1D study, completing the trial in December 2021. My nurses have asked me to send you some feedback. On the whole, I was pleased to participate in the trial as it felt that I was doing something worthwhile and that there was some benefit to being diagnosed! I found the access to the nurses to be invaluable and, of course, the CGMs were worth a lot…….

Daniel

In January 2021 at the age of 32 I was diagnosed with Type 1 Diabetes due to a high HBA1C reading and identification of ZNT8 autoantibodies. At the point of diagnosis I was wholly unaware of type 1 diabetes and had no family, friends or associates that had any connection to type 1.

Given that my diagnosis came during the coronavirus pandemic, I felt incredibly overwhelmed and confused whilst encountering significant concern for my future. I therefore proceeded to carry out significant levels of online research with the support of my close family to further understand the diagnosis. Whilst being fully aware that there is no cure for T1D, I was keen to establish the most up to date forms of medication and technology that would help me in managing T1D moving forwards.

Whilst carrying out this research I came across the T1DUK consortium webpage which allowed me to search for existing trials seeking to create a way to slow or prevent the progression of T1D. Given at diagnosis I had retained C-peptide levels that were considered on the lower side of the normal range, I was keen to take part in the study.

Upon applying for the study directly through the website, I was efficiently contacted by the study team who proceeded to enrol me on to the study to which I took part for an entire 12 month period. Upon reflection at the conclusion of the study, I can state that taking part was the best decision I have made in my journey since diagnosis.

By taking part in the Impact study, I was able to meet some highly professional and experienced doctors and nurses who were not only able to educate me on T1D and it’s management but also reassure me that life with T1D holds no limitations. It should also be noted that the study introduced me to fantastic modern technologies which significantly benefited my ongoing management and access to this technology was provided throughout the course of the study.

By taking part in the study I was able to achieve a sense of involvement to not only helping myself but the wider T1D community past, present and future. Furthermore, a special mention must go to the nurses of the Barts Diabetes Research Group who made me understand the fulfilling future I still hold following diagnosis.

I would advise any fellow T1D to take part in a study via T1DUK because it provides a fantastic experience not only for an individual but for the future of T1D as a whole.

Kate

What made you take part in the study?

The study presented the perfect opportunity for me to learn more about my diabetes whilst also enabling me to contribute to research towards a potential treatment.

How have you found being in the study?

Taking part in the study has been easy-going as it fits around my lifestyle. I’ve also found it very helpful to have access to a team of healthcare professionals who have made me feel more comfortable and accepting of my diabetes so early on in my diagnosis.

What advice would you give to someone who was newly diagnosed Type 1 Diabetes and considering taking part in research?

I would highly recommend that newly diagnosed Type 1 diabetics take part in research if presented with the opportunity as every study takes us one step closer towards treatments and cures for this lifelong condition.