UK Islet Autoantibody Registry
Currently running
Recruiting sites: Recruitment is via the study website www.ukiab.org
Summary
The UKIAb Registry is a list of children, young people and adults who have markers in their blood (islet autoantibodies) that indicate they are at risk of developing type 1 diabetes (T1D).
Aim
- To keep in touch with registry particpiants, to let them know about new research, available trials or treatments to delay or prevent type 1 diabetes
- To understand what it is like living in the early stages of type 1 diabetes
- To learn what support people need
- To work with public and patient groups and Diabetes UK to guide policy for their care
Eligibility to take part
- A positive T1D blood marker (islet autoantibody) test
- Aged 6 months to 70 years
- Living in the UK
What will I be asked to do?
- Provide agreement to share medical and family history data when you first join
- Complete a brief questionnaire once per year
- Allow your data to be linked to your NHS records (optional)
- You may be invited to take part in an interview study (optional)
Who is running this study?
This study is led by the University of Oxford and funded by Diabetes UK.
